NORD Welcomes Vice President of Information Technology Prashant Goel, Who Joins to Lead a Team of IT Innovators in Rare Disease

WASHINGTON, March 24, 2020 /PRNewswire/ -- The National Organization for Rare Disorders (NORD®) is pleased to welcome Prashant Goel as the new Vice President of Information Technology, based in the Danbury, CT office. Prashant, who joined NORD in February, leads a team of professionals with extensive knowledge of developing scalable enterprise-level systems, portals, and services that process millions of transactions daily across a variety of industries.

The NORD IT team has built a number of complex systems that have included a member enrollment portal and claims processing system for a national payer, a federal adverse event reporting portal for the Department of Health and Human Services, a fraud prevention system that processes over six million records a day employing machine learning, and databases that pull from billions of survey records across more than 100 countries. The team also possesses decades of experience with compliance and regulatory requirements in relevant areas such as HIPAA, GDPR, CCPA, PHI, PCI, and COPPA.

"The technical team at NORD has vast experience, both in length and depth," said Peter L. Saltonstall, President and CEO of NORD. "Under Prashant's leadership we will light the way in how technology can betransformative for the rare community."

Since its founding in 1983, NORD has been innovating to serve the rare community, from creating the RareCare® system to manage over $30 million given annually to support patients' access to desperately needed medical care and treatments, to pioneering the IAMRARE™ research study platform, built with the challenges of rare disease data collection in mind. NORD has seen firsthand the promise of technology in meeting the needs of rare disease patients and will continue to be at the forefront of realizing the potential of new tools that end the diagnostic odyssey, affect new cures and treatments for patients, and bring our community together.

Prashant brings over 23 years of experience leading custom software development projects and teams. He has a Bachelor of Science in Statistics and a Post Graduate Diploma in Computer Science from the University of Delhi, as well as a Post Graduate Diploma in Machine Learning and Artificial Intelligence from Columbia University's Fu Foundation School of Engineering. Prior to joining NORD, he led the data quality and fraud prevention teams at Dynata/Imperium as Senior Vice President and Chief Technology Officer. Before Dynata, Prashant held leadership positions at organizations including United HealthCare, Adaptive Marketing and Wipro.

About the National Organization for Rare Disorders (NORD®)
The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases. NORD is committed to the identification, treatment and cure of more than 7,000 rare diseases, of which approximately 90% are still without an FDA-approved treatment or therapy. Rare diseases affect over 25 million Americans. More than half of those affected are children.

NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. For more than 35 years, NORD has led the way in voicing the needs of the rare disease community, driving supportive policies and education, advancing medical research and providing patient and family services for those who need them most. NORD is made strong together with over 300 disease-specific member organizations and their communities and collaborates with many other organizations on specific causes of importance to the rare disease patient community. Visit rarediseases.org.           

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SOURCE National Organization for Rare Disorders (NORD)

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